Lalia said:. Dakota15 Senior Member Jul 20, If you'd like any specifics please feel free to PM me. Most of the anecdotal narratives listed above aren't far off IMO. I know that isn't the greatest answer but theres definitely been some acknowledgement of wanting to know more - I was suprised to be transparent how they acknowledged the seriousness of it and even referenced Jen Brea's TED talk.
I wouldn't be suprised if they became a player in research in the short future, but that's my two cents. Completely mixed the two up! Learner1 Senior Member Jul 20, Messages 5, Likes 10, Location Pacific Northwest. They seen to be severely understaffed for the demand they have.
If you can get in in a reasonable amount of time, be assured of 2nd and 3rd visits, etc. I've seen my functional medicine doctor every 3 weeks throughout my illness, and we always have plenty to do and to talk about - its not a one shot deal It would be wise to ask questions about what you can expect as a patient there.
You must log in or register to reply here. Francis Ruscetti of NCI, who worked on the project. Retroviruses like XMRV have also been shown to activate a number of other latent viruses. This could explain why so many different viruses, such as Epstein-Barr virus, have been associated with CFS. Robert H. Silverman, a co-author at the Cleveland Clinic.
If a role for XMRV is established, there could be new opportunities for prevention and treatment of these diseases. People may feel better for a while, and then have a relapse. The main symptoms of CFS are:. People with CFS may also experience many other symptoms, including problems with thinking and memory, worsening of symptoms when standing or sitting up, pain, and sensitivities to external stimuli. Treatment for CMS focuses on symptom relief.
The IOM's goal was to have the name reflect some of the disease's core symptoms, and to hopefully remove some of the stigma that surrounds this challenging condition. Chronic fatigue syndrome CFS is a serious and complex medical condition characterized by a cluster of systemic symptoms that affect physical and cognitive functioning.
The hallmark symptom is persistent and profound fatigue, which often worsens after physical or mental exertion. This fatigue lasts for more than 6 months, impairs normal activities, and has no identifiable medical or psychological factors to account for it.
Fatigue is just one symptom of the condition. In addition to fatigue, people usually experience other problems such as unrefreshing sleep, difficulty with memory or concentration "brain fog" , muscle and joint pain, and worsening of symptoms when in an upright position. CFS is a serious condition that has a profound impact on the people who have it. Many people with CFS are forced to curtail or find new coping strategies to handle normal daily activities.
About 1 in 4 people with CFS are so severely disabled that they cannot get out of bed or leave their home. Symptoms can come and go in cycles, and even when people feel better, they may experience a relapse triggered by exertion or an unknown cause. There are a number of challenges, confusions, and controversies surrounding CFS, including defining its possible causes, exact symptoms, diagnosis, and treatment.
There is even disagreement about what to call the condition. However, some researchers believe that ME is not appropriate because it implies brain inflammation encephalomyelitis and muscle pain myalgia , which are not its main symptoms. Many people feel that the term CFS is not accurate either because it contributes to belittling misunderstandings that undercut the serious nature of this condition. People with CFS are not lazy, neurotic, unmotivated, or suffering from the "yuppie flu.
The IOM's rationale for this name change is that SEID focuses on a core symptom of post-exertional malaise, which involves the entire body. The name also emphasizes that this condition is a "real" disease, not a psychological disorder. However, the term SEID has not been universally embraced. Some people feel that it is still open to distortion and misrepresentation. Until SEID becomes more standardized and accepted, CFS may remain more commonly recognized as the name for this condition, and will be the term used in this report.
The exact causes of CFS are not known. Researchers think that infection, immune system problems, genetics, and the effects of stress on hormone production may play roles in different people. There may also be a genetic component. It is likely that CFS is due to a combination of factors rather than one single cause. There is also no standard way that CFS develops. Some people have an abrupt onset of symptoms after an infectious disease or psychiatric problem.
Other people experience a slowly progressive emergence of symptoms, and have no history of mental health issues. It is not clear what sequence of events actually leads to the fatigue and other symptoms of this disorder. No primary cause has been found that explains all cases of CFS, and no blood tests or brain scans can definitively diagnose the condition. Researchers have focused on the possibility that a virus or other type of infection may trigger CFS.
Many people report having a flu-like illness or bacterial infection prior to developing CFS. EBV is related to mononucleosis, which can cause severe fatigue. Researchers are also investigating whether CFS may be associated with the reactivation of a latent infection.
Again, there is no conclusive evidence to support this theory. A number of studies have suggested that there may be problems of regulation of the immune system in people with CFS. Autoimmune Abnormalities: Researchers are investigating whether over- or under-activation of T cells, B cells, and natural killer NK cells, which help regulate the immune system, may play a role in CFS.
It is not yet clear whether people with CFS have the autoantibodies antibodies that attack the body's own tissues found in people with autoimmune disorders. Allergies: Many people with CFS have allergies or sensitivities to foods, pollen, molds, metals such as nickel or mercury , or other substances.
One theory is that allergens, like viral infections, may trigger a cascade of immune abnormalities that lead to CFS. However, most people with allergies do not have CFS. Abnormal levels of certain chemicals in the brain system known as the hypothalamus-pituitary-adrenal HPA axis have been proposed as a cause of CFS.
This system controls important functions, including sleep, the stress response, and depression. Set a structured activity program that avoids overexertion and reach out to your doctor for help in putting together an activity program.
I also recommend swimming, yoga and biking. Support from your family can make your condition easier to bear by spending time with you on good days as well as the bad days. A diagnosis can put you in a better position to manage your symptoms — even if there are still some mysteries surrounding your disease. If chronic pain and fatigue make you want to stay in bed a lot of the time, you may have fibromyalgia or chronic fatigue syndrome. Find out how doctors diagnose and treat these mysterious conditions.
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